Isolation, Social Distancing and Stockpiling: Lessons the world is learning at super speed during a global stop
Isolation. Social Distancing. Stockpiling. These current buzzwords are not new concepts for many special needs families including ours. On March 12, Kirk and I, along with our 16 year-old twin girls, Annie and Audrey (who both have disabilities), and my mom, arrived home from a 3 week vacation in Florida. Lily and Russ had already […]
Audio recording of my interview on the Drew Marshall Show. Visit website: www.drewmarshall.ca
There is a saying when it comes to people with disabilities and making accommodations for them.“Nothing about us without us.” What this means is when something in society causes a person with a disability to be excluded, those people trying to make the accommodations should consider
Dreams, hopes and expectations; we all have them. But we also have disappointments, tragedies, and pain, don’t we? We know that God is a giver of good gifts and He is continually surprising our family and blessing us in unexpected ways. Here are our family updates…
It’s not every day I get to speak about disability ministry and perhaps my nerves kept me from saying a few things I thought I could have.
I firmly believe ALL people belong in the Church, the community of believers, the fellowship, the Body of Christ. However without going out and inviting such persons and their families,
I think once we remove the word “tolerant”, only then can we truly love as Jesus loves. If we ever find ourselves annoyed by, “disruptions”, who happen to be people, we ought to look inward first. Otherwise we will only see such a, “disruption” as something to be removed, when what must be removed is ones own entitled heart attitude.
Let’s face it, disabilities are hard. Caring for my daughters who have tuberous sclerosis complex, epilepsy, autism and global developmental delay, is exhausting. I want them to be whole of course, but who am I to judge that their spiritual condition is not already whole in spite of the physical and cognitive limitations they possess?
Last week I began to get discouraged again, as it seemed Annie was once again having seizures, and was lethargic and aggressive at times. It seems once we get her settled on a new drug or dose, she is good for a few weeks and then bam, downhill we go and we are troubleshooting TSC again.
(In Honour of March 26, Wear Purple for Epilepsy Day) January 2004 – My twin baby girls were 5 months old.
I bit my lip hard in an effort not to cry. No one in that room knew that Annie was an identical twin. Nobody knew about Audrey, our other baby at home.
The looks of shock on the medical team’s faces
“This is what they do in Canada!” As a young Dutch immigrant my mom was thrilled with trick or treating. Treats were few in their home and a meal often consisted of bacon fat poured over potatoes. Halloween was not celebrated in Holland and the trick or treating custom was fully embraced by my mom and her siblings. And they were good, Christian kids.